Simply Right now
Here is what I have been going through since thanksgiving.
First I got the flu then my right side of my face drooped. Thought it was better for like two days but I have been so tired and my face keeps drooping and twitching. A couple weeks ago I called a nurse line and following the conversation was taken to the ER. I was checked for strokes then admitted for tests and observation. An MRI showed tiny lesions on my brain which are not of concern, it also showed two larger lesions that seem to indicate possible MS. I was released with an appointment for a second opinion. A couple days ago I had that appointment. I don't have anymore news which is frustrating. I have more testing this week.
Now I am letting you all in on some pretty private information. Please be kind in your responses. I have a lot on my mind.
I have dizzy headaches all the time. My balance is off. A 10 minute drive can exhaust me. The car wash made me feel nauseous and unsafe to drive - so I hung out in a parking lot until I felt well enough to return the 4 miles to camp. I think I feel good, then I try to do a normal thing and my cheek twitches uncontrollably and my eyesight is blurry.
My daughter and close friends are aware and in contact. My son has been out of touch for a couple years - I don't really know why, and I understand some people deal with difficult things alone. My friends have had different reactions from nothing is wrong with you, you are making this up (thank you and we won't be talking much now). Others are supportive and wondering how to help (honestly I don't know). Some family crawled out of the proverbial wood work and have decided that I am dying and sent condolences to my daughter - darn, really.
I'm not dying, well anymore than is normal for anyone, life simply threw me another curve ball!
I am taking my own advice and setting my affairs in order as well as preparing my emergency contact card and taping it to the inside of the glove box of my car. I'm sending emails to my daughter and son and emergency contact people. We all should do this. Even more so if we are Nomads and travelers. Imagine being the one who is helping a sick friend on the road and they don't know who to call.
I feel a myriad of emotions right now, frustrated, anxious, exhausted, grief - I miss Ozzie and his hugs, lonely - I never got much of a romantic relationship in life, i feel blessed with my property, so many friends, my minivan... i haven't finished hiking the AT and I haven't had a jeep yet and im feeling confused -- why can't the Dr decide whats going on? Etc
Love you all
Simply
Lesa
I'm sorry to hear about your troubles. I'm sure they will figure it out soon. You're not dying. I've never heard of anyone dying before their time if they haven't finished hiking the AT or owning a Jeep if thats on their bucket list 🙂. Now owning a Fiat Jeep Chrysler product may kill you but that's another topic. Talk to you later. Your friend Greg.
ReplyDeleteGreg!
DeleteBy the time this reply goes out - we have already chatted or texted. But Thank you so much for responding and reading my blog.
You are one of the best encouragements I have to keep writing, video blogging and sticking with my dreams and extreme minimalism (although I'm not sure but that you may have surpassed me in the minimalism thing while I was dealing with a fur-buddy and property and stuff!)
I really appreciate you - and as you already know
I am looking at Jeep products today and keeping in mind my bucket list as well as my intention to continue encouraging and helping others out on the road.... BIG HUGS my friend!
Lesa,
ReplyDeleteHuge Hugs!!!
OMGosh EMTSarah! Thank you girl. I hope all is well on your end! Wow it's been years since I visited.
DeleteThanks so much for the hugs - even virtual ones do help.
I'm sorry you are going through this Lesa. My thoughts are with you. Keep us all posted.
ReplyDeleteI Nonna! I'm doing my best to juggle a lot of things again - with some changes coming down the pike as well. I will do my best to keep you posted with updates.
DeleteThanks for commenting and visiting!
1st get rid everybody before "other" see above. i don't know what they are, but they aren't your friends. i had a bout of bells palsy. scared shit out of me. i can relate. i had droppy face and numbness. not the rest. took a while to correct itself. i'm not doctoring. care. b
ReplyDeleteB. Thanks for commenting.
DeleteI have sooooo been staying around only good energy people who have my best interests at heart. I, also, have been camping in areas that "Jazz my Soul" - it should help with healing and finding answers - even to my daily 'what the heck do I do now' questions.
Thanks for visiting!
Hi Lesa, Just came across your page a few months ago and i read your blogs, but this is my first time commenting.. I hope they find a solution to your health problems soon. I agree that we should always have our affairs in order. Take care of yourself and keep us all updated on you. I hope you have a good evening and start to feel better soon!
ReplyDeleteThank you for visiting and commenting. It means a lot to me and encourages me to continue writing. I actually like writing and talking over my morning coffee a LOT!
DeleteOh Lesa I hope you get some answers. It's no fun to get on the medical hamster wheel, been there done that and never did get good answers! I've been in and out of the RTR this week, saw your van, if I see you I'll say hello!
ReplyDeleteMary Ellen
Mary thank you for reading and visiting my blog. I appreciate the mention of saying Hello at the RTR! that was a busy time for me. I hope it was helpful to others.
DeleteHi Lesa! I just watched your interviews and van tour on Bob's channel and thought I would read some of your blog. I am sorry you are not feeling well, and I hope the doctor's have figured out what is wrong. Sending good vibes for a speedy recovery!
ReplyDeleteFuture Nomad from Portland, OR
Connie Brown
Connie, Thank you so much. I'm hanging in there - what else can I do? LOL everything will be okay until its either not or it's different...so rolling with the punches is where I am at
DeleteSending you love and prayers, Lesa.
ReplyDeleteThank you so much ZazuBombay!
DeleteThis must be a scary time for you. I hope that by now you have answers and a treatment plan. You are in my thoughts.
ReplyDeleteCarol, I am waiting for an appointment on March 2nd, to get results from a Spinal Tap testing. It's annoyingly hard to wait...darn
DeleteLesa my mom had the same symptoms and she was diagnosed with bells pausey! You can google it and read up on it ! Hopefully it’s nothing serious get well soon and safe travels ✌️
ReplyDeleteThanks for your response. The Dr's have ruled out Bells Paulsey for now.
DeleteHi Lesa,
ReplyDeleteI just learned about you thru the video with Bob Wells where you two are testing the usb blenders. So sorry to hear about all your health issues. Having any health issue is hard enough but I can only imagine how much harder it is being a nomad and on the road. I am praying that you feel better soon and are completely healed from whatever is going on. The older I get the more I realize that good health is a precious, precious gift which sadly we take for granted far too much when we are young. Be safe in your travels and may God bless you wherever you go!!
Thank you for your kind words of encouragement. I'm hanging in there and just taking it one day at a time - well, rather one moment at a time right now. I am practicing slowing down too....I kinda like to be busy and don't sit still much but I am challenging myself to actually REST and learning to RELAX! lol
DeleteLesa,
ReplyDeleteI have to respond to your unfortunate health situation. My mom dealt with a drooping face and eye twitching for several years. No doctor helped her. They said it wasn't Bells Palsy; said it was just stress and gave her anti anxiety meds and told her to relax. Didn't help. Gave her botox shots because that is suppose to help (SO EXPENSIVE). No help... it wasn't until SHE DIAGNOSED HERSELF and found a Facebook Support Group for people experiencing Myo-Facial Spasms. She was able to find a doctor (neurosurgeon) who confirmed her diagnosis (other neurosurgeons she met with never diagnosed, and never mentioned surgery option), scheduled her for surgery where he was able to wrap the nerve and protect it from the blood vessels that were pressing against it, causing the twitch. She literally came out of the surgery healed.
Continue to believe in yourself and don't give up. We're rooting for you.
Thank you so much for reading my blog and responding. I appreciate the concern and input into my health status. I am beginning to wonder if anyone has tested me for Lyme's Disease yet...so I will ask when I see the Dr on March 2.
Delete